If your mum or dad’s dementia seems worse in the evening, you’re not imagining it. For many people living with dementia, late afternoon and early evening are the hardest part of the day: more confusion, more restlessness, sometimes real distress. It’s common enough to have a name, sundowning, and there is a lot that can make those hours easier.
It isn’t anyone’s fault, and it isn’t a sign you’re doing something wrong. Here’s why it happens, what families tend to see at home, and what helps.
Nobody can point to a single cause, and it’s usually a mix of things building up through the day.
Every person is different, but families often describe the same few things. Pacing, or not being able to sit still. Asking to go home, even when they’re sitting in the house they’ve lived in for forty years. Following you from room to room. Packing a bag, or looking for someone who isn’t there.
Some people become tearful or frightened. Others get cross, which can be hard to take from a parent who was always calm. It’s worth remembering that this is the illness, not the person, and not a judgement on you.
If this sounds familiar and it’s starting to feel like more than one person can manage, our guide to what to do when dementia behaviour becomes too much at home goes through the options.
Small changes to the shape of the day tend to help more than any one big fix. Try a few and see what works for your mum or dad.
If evenings change suddenly, over a day or two rather than a few months, mention it to the GP. A sudden change can be a sign of an infection (a urine infection is a common one), pain, constipation, or a side effect of a new medicine, and these can often be treated. It’s also worth asking for a medicines review if things have been getting steadily harder.
Talk to the GP too if evenings are becoming unsafe, for example if your mum or dad is trying to leave the house at night or has had a fall.
Evenings are when carers are most worn out too. If you’re running on empty, that matters. A short stay can give you both a break, and our page on respite care at Laurel Bank explains how one works.
If you’re starting to look at homes, ask each one what late afternoon looks like. A home that understands dementia will plan the end of the day around the person: calm, familiar faces, a settled routine, and someone who knows what helps that particular resident when things get hard.
At Laurel Bank, in Gee Cross, Hyde, we care for people at every stage of dementia, including advanced dementia and behaviours that challenge. We’re known locally as the home that says yes when others say no. Calm, familiar routines and a consistent team help residents feel settled, and we take time to learn the small things, like a favourite radio show or how someone takes their tea, that can turn an unsettled hour into a calmer one. There’s support day and night, and we’re rated Good by the Care Quality Commission.
You can read more about our specialist dementia care for families in Stockport and Hyde, or our guide on how to choose a dementia care home. And if you’d like to talk it through, get in touch with our team or come and see us for a brew and a chat.
Sundowning is the name for the confusion, restlessness or distress that many people living with dementia feel in the late afternoon and evening. It can include pacing, asking to go home, following people around or becoming upset more easily.
Not always. It tends to come and go, and it’s often worse after a busy, tiring or unusual day. Keeping days calm and predictable usually makes evenings easier.
A short rest is fine and can help. A long sleep late in the afternoon can make evenings and nights harder, so many families find a shorter rest after lunch works better.
Not necessarily. Sundowning can happen at any stage. A sudden change, though, is worth a word with the GP, as it can be a sign of an infection, pain or a medicine side effect.
Yes. A home with a consistent team, a calm routine and support through the night can plan evenings around each person. At Laurel Bank we care for people at every stage of dementia, including those other homes have turned down.
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